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The
Rett Syndrome Association UK and Medifit
Instruments Ltd have teamed up to offer parents,
clinicians and carers information on Rett syndrome. Rett Syndrome
Association UK is a national charity which provides information,
friendship, advice and support to anyone involved with a child
or adult who has Rett syndrome.
This website based resource will give important information
on the latest development on the diagnosis and treatment of
Rett syndrome. Until
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now, it has been difficult
to monitor brainstem parasympathetic activity in real-time.
Medifit Instruments Ltd has now developed the NeuroScope
Model 300BA which gathers information from the brainstem continuously
and non-invasively. These include the activity of the vagus
nerve, which represents brainstem parasympathetic activity.
The NeuroScope Model 300BA allows measurements to be
taken without any discomfort to the Rett Patient as it is
non-invasive. We are confident that this new method will help
clinicians in diagnosing abnormal breathing patterns and other
conditions found in patients with Rett syndrome.
We are grateful
to the RETT ASSOCIATION
UK for their grant towards the cost of developing the
Rett resource website.
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Julu, P.O.O
(2001). The central autonomic disturbance in Rett syndrome. In: Kerr,
A. and Witt Engerstrom, I (eds) Rett Disorder and the Developing
Brain. Oxford University Press, Oxford, pp132-181. |
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